Authors (including presenting author) :
LAU CC(1), CHEUK HY(2), KAM KW(2)
Affiliation :
(1)Department of Medicine & Geriatrics, (2)Patient Resources Centre
Introduction :
Many studies found that caregivers of patients with dementia were in great need of information about dementia. However, more than half of caregivers at Memory Clinic was lack of those information which was consistent with the findings of a local study. The local study also highlighted that was a reason for low level of social service utilization. To this end, Department of Medicine & Geriatrics and Patient Resources Centre (PRC) worked collaboratively to launch a new initiative for filling the service gap. In the pilot phase, from October to December 2019 (12 weeks), 50 patients and 52 caregivers were served.
Objectives :
This study reviewed the effectiveness of the new initiative.
Methodology :
A group of 8 trained volunteers was formed, in which five volunteers would station at Memory Clinic of GDH/TMH to provide information and companionship for every patients and caregivers. A mixed-methods was undertaken for evaluating the initiative: (1)Focus group discussion with volunteers (n=8) (2)Non-participant observation of practice (3)Interview with staff of Memory Clinic (n= 4, 1 doctor, 1 APN, 1 clerical, 1 PCA) and PRC (n=1)
Result & Outcome :
(1)Effect on Patients: Respondents viewed that patients were meaningfully engaged through talking or playing games with volunteers. (2)Effect on Caregivers: Respondents reported that most caregivers found this initiative useful. Some caregivers even wanted to become a volunteer of this initiative. (3)Effect on Volunteers: Volunteers viewed that they gained insight through the helping process. (4)Effect on Service of Memory Clinic: The staff saw that the initiative was having a positive effect which reduced the time for staff to introduce generic information on dementia. Meanwhile, volunteers offered a special role to the service of Memory Clinic which could not be replaced by staff. (5)Suggestions for Service Improvement: Respondents suggested enriching the training for volunteers and extending the programme. (6)Factors Influencing Success Three major factors were identified: a) Adequate training and support to volunteers, b) Support from Memory Clinic staff, c) Coordination of PRC staff. To conclude, the effect of the new initiative was viewed as greater than anticipated. The involvement of volunteer services in the patient care pathway improved patients and caregivers’ experience and satisfaction, created an “Dementia Friendly” environment and provided a holistic patient-centred care.